We need seizures!!! Do you think I'm crazy yet - not quite!!! We need a good, strong, lengthy seizure tomorrow between the hours of 8 and 12. We sat for 4 very long hours today waiting on a seizure - me staring at Camilla while barely blinking and trying to hold her still, the EEG tech staring at the monitor and the nurse holding Camilla's arm in her hand with two syringes attached to her IV. The test ended at 12:00 straight-up. Camilla had a seizure at 12:07.
The day wasn't a total waste though. We were able to get the baseline scans done which just means that they injected the tracer anyway at 12:00 and we went through with the scans at 1:00 in order to have a representation of her brain without seizure activity. We have two days left to get the 'with seizure acitvity' scans. Please join us in praying for an acceptable seizure to come during the test tomorrow - say around 8:15. haha
She is otherwise good. She is tolerating the EEG well and also tolerating not being able to eat each day until after the scans at 1:00. Her head should start to itch from the leads and glue by tomorrow afternoon and will require Benedryl and lots of patience so we still have some battles to go but we are optimistic!
Thanks for all the calls, visits, texts, emails and messages. We appreciate each and every one of them. I will try to post some pics later and update again tomorrow.
"For I know the plans I have for you" declares the Lord, "plans to prosper you and not to harm you. Plans to give you HOPE and a FUTURE." Jeremiah 29:11
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