bumps in the road...

Today has been a VERY ROUGH day for Camilla. She is not wanting to eat the applesauce that contains her meds including her Tylenol and Motrin and she is feeling more pain today due to that fact. Her right eye is swollen almost entirely shut and she is very agitated with all of the wires, monitors and IV's on her body. Around noon it was found that her drain was not working properly and her head wrap was becoming saturated with blood and fluid because it had no where else to go. Dr. Miller (Blount's resident) came in to replace the head wrap and once it was removed they discovered that the area around the grid wires was pulling open and needed stitches. Our options were to take her back to the OR to stitch it up under general anesthesia (prolonging possible seizures), give her pain meds through her IV and do the stitches here in the room (prolonging possible seizures), numb just the area around the wires with 2 shots then do stitches (shots would burn)or do stitches without anything. Unfortunately for several reasons stitches without anything was our most logical option. It was horrible - by far one of the most difficult things I've ever had to do - to hold her down (along with 4 others) while he put 2 stitches into the top of her head. And let's talk about her head - the incision is at least 12" and too many staples to count running across from ear to ear, the drain is right at the top of her forehead and about 8 large grid wires that seem to be 'growing' out of the crown of her bald little head. So needless to say, after the stitches, the rest of her day has been filled with lots of pain and frustration. We are still waiting on seizures to return. Surgery is definitely not tomorrow and we are hoping she begins seizing soon or we are looking at pushing back the originally scheduled surgery date of Tuesday. Specific prayer requests right now include pain relief, eating and drinking and seizures to start soon. I had planned to share more details but from the time I started writing until now Camilla's head wrap is showing signs of more blood and fluid. Dr. Miller is on his way back down. Prayers please...