where do I begin-

So I need to update since leaving the hospital last Thursday (only after a stop in the emergency room on the way out due to a fall). Dr. Kim started Camilla on Vimpat on Friday and began weaning Clonazepam that same day. Camilla's day Friday was good. She spent most of it resting and recovering from the week. Saturday (as most days now do) brought something we hadn't faced before. Camilla was with her Cici and Papa in Tuscaloosa when the reaction to the new med kicked in (we were warned she might be very tired but had to read from the insert about the sickness). She vomitted 3 times within the span of an hour that morning. After a quick nap (and her Daddy picking her up half way) she seemed to have recovered and was eating, drinking and playing as normal. Sunday brought a very similar situation so on Monday, upon taking her to school, I made the teachers aware of what might happen and the fact that it should start to 'wear off' soon. Boy was I wrong, after vomitting 6 times and sleeping a large part of the morning I picked her up just before noon and allowed her to recover at home. She did slowly perk up and began eating, drinking and playing by the afternoon. One thing worth noting - Camilla has lost a noticable amount of weight since her surgery in May and we are starting to become somewhat concerned about what she eats and how much of it so going several days eating very little did not help our growing concern. After emails and calls back and forth between Dr. Kim's office we were able to reduce the Vimpat dosage by half and were told to slowly work our way up over the next week.

The PET scan that we were not able to get last week during the hospital stay (because according to insurance it can only be done on an 'outpatient' status) was scheduled for today. So after arriving at the hospital at 7:30 am we were sent over to get hooked up for yet another EEG. I was dreading this SO MUCH since last week's EEG was 96 hrs. I figured Camilla would go ballistic and she started out that way but as I was explaining things to her she began to calm down (a first) and we had a great tech who was fast, gentle and who sang to her the entire time. We were done in record time and headed to a room to get ready for yet another nuclear injection followed by scans. That's when the day went south - 4 sticks to get an IV - 2 hr wait on the injection - late to pick her up for the scan - no food all day kicking in - and the machine malfuntions during the scan - we will have to redo the entire day in the next week

she just can't catch a break...

"For I know the plans I have for you" declares the Lord, "plans to prosper you and not to harm you. Plans to give you hope and a future." Jeremiah 29:11