One of these days I'll find the time for a detailed update - tonight's not it - I must sleep! Today went well - we arrived at 7:30 am to find that her MRI was not actually scheduled to 10:00 am - oh well just part of it right? She was sedated for the MRI and everything was fine for that, she even slept through about half of the process of the tech putting the EEG leads on her head. The other half was typical - 2 adults wrestling her down while the tech tried her best to hit a moving target - all to the tune of screaming, crying and shouting :( After recovering from that traumatic event she was happy the rest of the day and only a little restless.
She is sleeping well now and it's a good thing. Breakfast will arrive at 4:30 am due to the fact that she has to be sedated around noon tomorrow and can't have anything to eat after 5:00 am. The first part of the SPECT scan will begin tomorrow at 8:00 am and run till noon. During this time there will be a nurse and an EEG tech in the room with us monitoring Camilla and the EEG readout. I will have to be completely focused on Camilla and when she has a seizure I will have to try to guess whether it will be one that will last long enough for the nurse to administer the radioactive tracer through her IV. We need the seizure to last for at least two heartbeats (10 secs) after the dye is injected. This will allow it to reach the affected areas of the brain. She is only allowed one injection per day and we only have three days to get this. After the first part of the test is complete they will take her down for the scans which will ultimately produce a 3D image of her brain and when overlaid with other tests they are running will highlight the area(s) of the brain where seizures are originating.
And what are hoping to gain from this? We are looking to see if her seizure activity is focused to certain areas of the brain and if so, if those areas can be surgically removed. And what are we praying for? We are praying for the testing process to be easy on Camilla, that the tests are clear and if she is meant to have surgery again she will be a candidate based on these tests and if she is not meant to then she will not be a candidate. Thank you for all the well wishes and the prayers. I will update again soon!
"For I know the plans I have for you" declares the Lord, "plans to prosper you and not to harm you. Plans to give you HOPE and a FUTURE." Jeremiah 29:11
1 comment:
Praying for everyone...Camilla, you and Brandon, the nurses, techs, doctors. God is with you in that room. Never forget that. Hugs!
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