I had no idea it was going to happen last week, I was thinking January, but when I got the message on my voicemail saying that Camilla had been presented in conference for surgery last Wednesday and I should return the call I almost fainted. I just wasn't prepared to hear either way and then to make things worse I called back just as the office closed for the day. So first thing Thursday morning I called to find out that Camilla was approved for surgery and we are looking at a February or March date. Her pre-op visits will be December 12th and we will set a date at that time.
Brain surgery - you hear those words and you think 'that's as bad as it gets' and in a lot ways it is but in a lot of ways it isn't. We have had many positive things come out of Camilla's last surgery this past May; it just so happens that seizure reduction wasn't one of them so we'll try again. We have all the reason in the world to expect great things from this upcoming surgery and in a lot of ways we are excited about what it could mean for seizure control and development.
One thing this past surgery (corpus callosotomy) did was to lateralize her seizures. They are now clearly confined to the right hemisphere of the brain, even more specifically the frontal and parietal lobes. The next surgery will be a resection (grid surgery) that will identify and remove specific points where seizures originate. This surgery is more intense and more invasive than her previous one and will require a longer hospital stay. We are praying for peace and direction through this process and of course for Camilla's well-being and God's glory above all else. I will share more as we know more.
During this season of Thanksgiving I want to be sure that everyone knows how thankful I am for Camilla, how thankful I am to be her Mommy, how thankful I am that God trusted me to care for her and how thankful I am for the pure joy that she possesses and shares with everyone who knows her and knows her story...
"For I know the plans I have for you" declares the Lord, "plans to prosper you and not to harm you. Plans to give you hope and a future." Jeremiah 29:11
3 comments:
Kelley,
Your heart genuinely opens and pours out the love and dedication you have for Camilla. Nothing is more apparent than that. I pray God's continued direction and peace as you seek treatment for Camilla.
As most people do, at this time of year I try to reflect on the many things I am thankful for in my life. Spending time with your sweet Camilla when she was just beginning her time in school was truly a blessing in my life. She offers unconditional love and radiates pure joy. Kelley watching you mother Camilla was just an inspiration to me as a mom. Your love for Camilla is evident every minute of each day. You just glow with your love for your child. Every child would be blessed to have such a wonderful caring positive mom. It is so awesome to see her photos. She has grown from a three year old cutie pie into a beautiful young lady. I will keep your family in my prayers and also say a prayer of thanks for progress camilla has made and that any future medical needs will be a benefit to her also. Camilla is truly a blessing. A wonderful joy with a wonderful family to support and love her.
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