medical update

OK friends - lots to report here!

We have been playing with medication dosages for several weeks now and so far we have only seen more seizures and Camilla's disturbing reaction to each one. She is still screaming, clapping violently, and taking off running after EVERY seizure. She will also start saying NO,NO,NO very loudly immediately following. She has never had this type of reaction before and it is very disturbing and catches the attention of everyone around her at the time. Seizures are averaging 10-15 per day right now.

We just arrived back home after having Camilla's MRI today at Children's. We had to arrive at 6:30 am and were done with the procedure around 10:00. We don't expect any news from this really - just another view to have in hand going into surgery. And speaking of that, I just now received an email from Dr. Kim stating that she will present Camilla's case at conference THIS WEDNESDAY. We covet prayers during this time leading up to and throughout the day on Wednesday. This is such an important day in Camilla's life. This group of 10 doctors and specialists will be making decisions during this conference that will affect her quality of life now and for the rest of her life. Please pray for their wisdom and Godly guidance during this time. I will post the decision from conference when we know.

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you. Plans to give you HOPE and a FUTURE." Jeremiah 29:11