Camilla: Camilla Update

Monday, February 9, 2009

Camilla Update

So many of our friends and family have been calling and asking and anxiously awaiting -along with us- for a date for Camilla's upcoming VNS placement surgery. I just got the news today and figured this would be an easy way to let you guys know that it will be February 24th at Children's Hospital in Birmingham. Also, we have scheduled an appointment with a doc who is known for his work in helping children overcome developmental disabilities as a result of vaccinations, through biomedical interventions. That appointment is set for March 16th in Nashville. Please keep our sweet, little girl in your thoughts and prayers as she endures this upcoming surgery and the tests and traveling that will come with both visits. Please help us in praying that these interventions will work to stop her seizures and advance her development. Thanks for your concern-

4 comments:

amyandcarltonwatt said...: We will be praying for you guys! Will Camilla have to stay at UAB after the surgery for a while? Let us know. We will be checking in with yall!; February 11, 2009 at 10:55 AM
Bedsole Boys said...: We love ya; February 12, 2009 at 10:09 PM
Brandi Barnes Parten said...: We will be praying for Camilla and the two of you too!; February 13, 2009 at 12:08 PM
Amanda Sanford said...: Definitely praying! Looked up the procedure on the internet and it is fascinating research! I am praying for a miracle. Want to see Camilla blossom tremendously after these interventions. So proud of how far she has come already and cannot wait to join you in praising God for each baby step along the way!!!; February 16, 2009 at 11:41 AM

Post a Comment

Camilla's Story

Camilla is such a blessing! In April of 2006, at just 6 months old, she was diagnosed with Infantile Spasms, a very rare and devastating form of childhood epilepsy. Despite numerous medications, the Ketogenic Diet, a Vagus Nerve Stimulator and a Corpus Callosotomy she continued to have daily seizures until undergoing a grid/resection surgery in March of 2012. She is still challenged by severe developmental delay and she doesn't speak but this sweet, energetic and happy little girl amazes us everyday with her grace, her beautiful smile and her contagious laugh.