So much has been going on lately with Camilla but I will try to give a quick update concerning her medical situation. Seizures continue and are now pushing 15 per day, they do seem to be worsening just a little with each passing week and her focus, hyperactivity and behavior problems seem to be worsening as seizures increase. Sleep is being interrupted during this time as well. We have also seen an onset of shaking - we don't know yet if it is medications, seizures, or ???? but Camilla is very trembly all the time - even to the point of no longer being able to grab something from someone's hand and not wanting to feed herself because she can't hit her mouth. Dr. Kim is currently increasing Lamictal, decreasing Depakote and considering the addition of Vimpat.
We have decided to move forward with the hospital admission in the fall that will work to find a focal point for the seizures. It would be a week-long admission to Children's and the tests we know of so far would include - MRI, SPECT scan, PET scan, lumbar puncture and an EEG for the length of the stay. These tests would decide if there is more surgery to follow. We are waiting for dates for this admission.
As for details on everything else - I'm just not in a place that I can tackle those emotions and realities on here right now - sorry. Maybe soon-
"For I know the plans I have for you" declares the Lord, "plans to prosper you and not to harm you. Plans to give you hope and a future." Jeremiah 29:11
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