Thursday, May 24, 2012

surgery pictures...

please know that I spared you the gruesome pics with the wrap off and during surgery...you can thank me later...
video

Tuesday, May 22, 2012

cheese...

Camilla has gotten to where she will do a really 'cheesy' grin when you snap a picture and say 'cheese' - here she is 'cheesing' it with Dr. Blount(neurosurgeon) and Gigi(his nurse practioner)at her last check-up. **I'm trying to get the blog up-to-date, pictures and all, and I think I finally figured out the problem I was having uploading pictures so hopefully I will get caught up and back to posting regularly :)

and the verdict is...

We spent yesterday at Children's for Camilla to undergo a 2hr EEG, her first since surgery, to determine what is now going on in that pretty little head! It was very difficult to hook her up for this test (as usual) and we had to use a papoose board for only the second time ever. Once she was hooked up though she was calm and happy even smiling and laughing to pass the time. After the test we saw Dr. Kim who gave us the results. The verdict: there is still spiking in the right parietal lobe. Are we upset at all by this news? Heck NO! We still have not seen any seizures and Dr. Kim stressed that this activity could very well dissipate by her 6 month EEG. Realistically we know that any abnormal activity is not good news but we don't really put our hope in EEG's now do we? "My hope is in you Lord, all the day long. I won't be shaken by draught or storm..." Anyone else like that song too? I plan to do a very detailed update tonight to brag on all the great things going on with Camilla right now! "For I know the plans I have for you," declares the Lord "plans to prosper you and not to harm you. Plans to give you hope and a future." Jeremiah 29:11

Thursday, May 17, 2012

Run/Walk/Roll a 5K for Camilla

I just wanted to let everyone know that some sweet people at our church have gotten together and are hosting a 5K for Camilla this Saturday, May 19th. Registration begins at the Demopolis City Landing at 7:00am with the 5K and Kids Fun Run beginning at 9:00am. The entry fee is $20 and includes a t-shirt. If you need more information or would like to participate or volunteer you can leave me a message here or email me at kelleyjsmith@yahoo.com Thanks to everyone involved and Camilla can't wait to be there and cheer everyone on!

Sunday, May 6, 2012

quick update-

Bear with me - I've been trying to update the blog for four or five days now with some pictures and I'm having some space 'issues' with blogger. Hopefully I will have that resolved soon and will be able to post the slideshow from surgery and do a thorough update on how Camilla has been doing. For now I hope you'll settle for a quick update - she's GREAT! No seizures so far and the only real 'issue' we are dealing with at this time is the fits that she is having daily. These are 'I'm not getting what I want' and/or 'I can't talk to you to make you understand what it is I want/need/is hurting me' fits and since she is approaching 70 lbs., is very tall for her age and is stronger than most adults I know it is becoming increasingly difficult to deal with her during these fits. Please pray for this specifically - pray for her frustration, all of our understanding, physical and mental strength for Brandon and I and for us to find an effective way to deal with her when these fits arise (which has been 2-3 times daily for the last several weeks.) Hoping for a detailed update soon and pictures! Oh and Happy Birthday to Crosby - he turns 2 tomorrow:)